Having a chronic progressive illness like PD commonly has important consequences for the psychosocial functioning of patients. These consequences are usually evaluated with health-related quality-of-life instruments, which include physical items in addition to items that address psychosocial functioning. Health-related quality-of-life instruments are very useful to examine the consequences of a disease for an individual’s ability to perform physical, mental and social functions and fulfil expected roles.
We developed a short psychosocial instrument for patients with PD, the SCOPA-PS. The scale demonstrated good reliability and validity, and includes 11 items with a possible range of 0-33.