Medical details

To ensure that you receive proper treatment, your doctor will need to keep a file. This is also a statutory obligation of every healthcare provider. Personal information on all patients who are treated in the LUMC are recorded in a local Electronic Patient Record (EPR). This record contains information on your health, examinations and treatments that you have undergone and information that your doctor has requested with your consent (for example, from your GP or from a specialist in another hospital). The LUMC has rules as to how this information is used.

If you want to see your medical record, obtain a copy or delete all or part of it

You and your legal representative are entitled to inspect the medical record. As long as you are receiving treatment in the LUMC, you should direct your request to the head of the department where you are being treated. If you wish to receive a copy of all or part of your medical record, you can also ask the head of the department where you are being treated.

If you wish to inspect your medical record or receive a copy after being discharged from the LUMC, you will need to send a written request to the Director for Medical Affairs of the LUMC.

If you wish to remove (part of) information from your medical record or have it deleted in full, you should send a request to the Director for Medical Affairs of the LUMC.

Complaints about the use of your medical details

If you are of the opinion that your details have not been handled correctly, you should contact the Patient service desk. You can file a complaint via our complaints procedure.

The use of medical details in the LUMC

LUMC staff members who are involved in your treatment and who deal with the administrative side of it are bound by professional secrecy. They are only allowed to inspect the information they need for their work.

As a university medical centre, the LUMC uses patient data for purposes of scientific research and instruction at the LUMC. The use of this data for these purposes is subject to strict rules.

Because the LUMC is responsible for both instruction and research, you will often see more doctors at your bed than is the case in most hospitals. For example, house officers (doctors who are training as specialists), junior house officers (students who are training as medical practitioners) and student nurses often take part in the conversations with you and in physical examinations. If you object to this, please inform the nursing staff.

The use of medical details outside the LUMC

Personal details that include your name are furnished to persons and organisations outside the LUMC only with your consent. However, there are a few exceptions.

Data for cancer registration

The LUMC furnishes details for purposes of cancer registration to the Comprehensive Cancer Centre of the Netherlands (IKNL) without asking your consent. If you object to this, please inform the head of the Medical Records Department.

Data for a number of healthcare organisations in Leiden and surrounding area

A number of other healthcare organisations in the area around Leiden, such as the Deep-Vein Thrombosis Centre (Trombosedienst) and the Curium Academic Centre for Child Psychiatry, are linked to the central computer of the LUMC. The staff of these organisations do only have access to a limited part of the data.

Data for blood group tests in the TRIX national data system

Data from patients who are undergoing blood tests for a possible blood transfusion or a stem cell transplant are included in a national data system called Transfusion Register of Irregular antibodies and X(cross) tests, TRIX for short. The Dutch Personal Data Protection Act applies to the registration of this data.

The reason to register this data is that blood group tests can bring to light red blood cell antibodies. Known as irregular antibodies, they can play an important role in blood transfusions. Over time it becomes more difficult to demonstrate antibodies, but they are still important in the selection of a blood product. Patients who have undergone a stem cell transplant may exhibit a change in their blood group.

The information in the TRIX national data system may only be consulted by affiliated transfusion laboratories in the Netherlands. Details are never furnished to third parties without your consent. If you object to the inclusion of your details in TRIX, please report this by email to BTD@lumc.nl or by post to Bloedtransfusiedienst LUMC, Postbus 9600, E3-Q, 2300 RC Leiden. The information in the national data system can be deleted at any time.

Data for your healthcare insurer

Certain information is furnished to healthcare insurers. This is information the healthcare insurers need in order to be able to carry out your insurance contract.

Medical photography

Your attending physician may send you to a medical photographer in the LUMC. Photographs are a useful resource in deciding on a treatment, making an assessment or observing the course of an illness.

You are always asked for written consent for the use of photographs on which you can be recognised. If you do not wish to cooperate in having medical photographs taken, it will not affect your further treatment or your relationship with your doctor.