Research IT is the ambitious LUMC program set up to improve the data and knowledge exchange between researchers. The program aims to strengthen the foundation for scientific research at the LUMC and prepare it for future developments.
Why are we doing this?
Society wants to know what is happening (and what isn’t) with its data. Funding organisations, such as NOW, ZonMw, and the European Commission, set increasingly high demands on datasets that are gathered in research they (co-)fund. Researchers have to give insight into and be transparent about how they use and store data. This not only concerns data collection, but also data management, data analysis and the findability of data after conclusion of the project. This data transparency is called FAIR data: Findable, Accessible, Interoperable and Reusable. FAIR data enables researchers to exchange and acquire knowledge. To achieve this transparency, several programs have been initiated within the European Union.
The Research IT program is set up to strengthen the foundation for research at the LUMC. Using correct procedures, regulations and IT-services enhances the quality of scientific research, ultimately leading to better patient care. By making data findable, accessible, interoperable and reusable, we respond to the growing need for transparency. Clear procedures, regulations and IT-infrastructure are of essential importance to safeguard the privacy and safety of the patients.
The Research IT program started in 2015 and will be executed from 2015 to 2018. If you want to find out more about the analysis done prior to setting up the Research IT program, take a look at the Strategic Study Research IT 2018.
The Research IT consists of four themes:
- Care for research – Research for care: Data is crucial for much scientific research. This theme makes data more easily accessible and enables the sharing, collection and storage of data (FAIR data).
- Jump start: Good preparation and support form the basis for good research. By using IT-services for statistics, methodology and data analysis, researcher scan improve the quality of their research. Besides, IT-services offer a valuable contribution to making the research process more transparent, by making data accessible.
- Transparent research avenues: More and more, researchers collaborate across disciplines. By enhancing these collaborative efforts, we facilitate the exchange and acquisition of knowledge. This enables us to not only improve the quality of research, but also contribute to the quality of research results (FAIR data).
- Data is gold: The Research IT program aims to make it easier for researchers to share knowledge with other researchers and others.
The LUMC has set up several projects to enhance the foundation for research. These projects all contribute to the abovementioned themes and the Research IT program.
- FAIR Data Stewardship: This projects concerns the implementation of FAIR data stewardship at the LUMC. Guidelines for data management are being developed.
- Clinical research and the EPF: This project focuses on improving (FAIR) data collection for clinical research. Among other things, the project will determine whether the current EPF is sufficient, or requires the purchase of different tools.
- Metadata and registration of research: To gain insight into which research projects are conducted within the LUMC, a registration method is being devised.
- Re-use of data through Medical Intelligence: This project aims to make all LUMC data available for re-use.
- Transparent research: To ensure more transparent research and reusability of data, an electronic lab notebook(e-lab) is being implemented.
- Multidisciplinary support: The implementation of a research support desk, to help out researchers when they have questions. The support desk links the questions to the right persons and refers the researcher.
- IT infrastructure: This project focuses on the IT infrastructure necessary for research, particularly with regard to calculation capacity (HPC) and storage facilities.
The privacy and safety of patient data is always key. Therefore, data security plays a vital role in this program. Data has to be FAIR, in such a way that the data is secure and cannot be traced to individuals. Data security is an integral part of every Research IT project.
Do you have questions about the Research IT program? Then please, do not hesitate to contact the Research IT team via firstname.lastname@example.org.
More information on FAIR data, and the programs initiated to procure greater transparency in research, can be found here:
- Data4lifesciences: Program that works on an integrated research infrastructure in, for, by and between UMC’s and partner organizations.
- Nederlandse Federatie van Universitair Medische Centra (Dutch Federation for University Medical Centres): The driving force behind Data4lifesciences.
- Landelijk Coördinatiepunt Research Data Management (National Coordination Point Research Data Management): The LCRDM facilitates a national approach to data management in the Netherlands.