List of Centres of Expertise for Rare Diseases

The Ministry of Health, Welfare and Sport has recognized centres of expertise for rare diseases. As a patient or a referrer it’s easier to see whom to turn to for specialist care. The following LUMC centres of expertise have been recognized.

Centres of expertise at the LUMC

The following centres of expertise at the LUMC have been recognized by the Ministry of Health, Welfare and Sport:

  • Center for Bone Quality
  • Neuromuscular Center LUMC
  • Huntington Disease Center Leiden
  • Cerebral Hereditary Angiopathy Center
  • Headache Center LUMC
  • Autonomic Disease Center
  • Nerve Center
  • Expertise Center Genetics of growth
  • Gender Clinic Leiden, WAKZ-Curium LUMC
  • Expertise center for monogenic diabetes mellitus
  • Expertise center for lipodystrophy
  • Center for Endocrine Tumors Leiden (CETL)
  • Hemophilia treatment center LUMC-Haga
  • Expert Center for aplastic anemia
  • Expert center for hemoglobinopathies
  • Expert center for pediatric stem cell transplantation
  • Bone and soft tissue tumor clinic
  • Leiden Ocular Oncology Center
  • Female Cancer Center - Leiden (FCC-L)
  • Expert center for cutaneous lymphomas
  • Expertise Center Rare autoinflammatory diseases
  • Expertise Center Pediatric ophthalmology
  • Expertise Center Fetal medicine
  • Prenatal and congenital infections by cytomegalovirus and parvovirus B19
  • Congenital Heart malformations (CAHAL pediatric)
  • Marfan-FTAAD Clinic
  • Hereditary bowel cancer center
  • Clinic for Lupus-, Vasculitis- and Complement-mediated systemic diseases
  • Center for Inherited kidney disease
  • Alpha1 International Registry (AIR)
  • Center for Narcolepsia
  • Expert center for familial cutanous melanoma
  • Center for Hereditary Retinal Diseases Leiden Amsterdam
  • Center for Congenital bone marrow failure and leukemia predisposition syndromes
  • Center of expertise Coffin-Siris syndrome
  • Familial and hereditary breast cancer center
  • Center for vestibular schwannoma and NF2 (voorlopige erkenning)
  • Center for Polyomavirus-associated skin infections and cancer (Acronym PASIC) (voorlopige erkenning)
  • Expert Center for hematopoietic stem cell transplantation and T-cell immunotherapy
  • Center for primary and secondary immunodeficiencies